Big Data and AI Advisory Group

Emma is a first year PhD student in the NEST Lab at King’s College London. Emma’s research aims to identify early indicators of developmental differences in babies with early-onset epilepsy, to improve our understanding of how developmental challenges associated with childhood epilepsy may impact children and their families.

Emma will be recruiting an advisory group for a research project to help ensure that it meets the needs of, and includes the voices of those directly affected by childhood epilepsy. The project will explore patient, parent and public perspectives on Big Data and Artificial Intelligence approaches in childhood epilepsy research.

The advisory group will be made up of several members, including:

• One to two adults aged 26 or over who were diagnosed with epilepsy as a child

• One to two adult parents or carers of a young child (aged 5 years or under) with epilepsy

• One to two young people aged 18 - 25 who were diagnosed with epilepsy as a child.

You can access the application form by clicking on the links below.

You can also:

• Fill out this form on paper, and send us a copy of it by email

• Fill out this form on the computer and send it by email

• Speak to us on the phone or video call

• Send us a video of yourself by email

One thing to note is that we are specifically interested in epilepsy with onset in early childhood and will likely prioritise this sort of experience, however if you feel your experience is particularly relevant for this project you are more than welcome to complete the application form, we'd love to hear from you.

Download the form using the links below。

Welcome to the Advisory Group!

Thank you so much for your interest in joining our advisory group! Unfortunately, recruitment for this specific programme is now closed. We are incredibly grateful to everyone who reached out to share their time and expertise.
If you would like to stay involved or hear more about the BEE Study, please email us. We would be happy to keep you updated on our progress and will be sure to notify you if any new opportunities to join the team arise in the future.

Please take your time to read the handbook Emma created. The handbook answers any questions you may have about your role, your contributions, and the purpose of this project.

Further if you have any questions, you can leave us a message through the contact form.

OR

Send us an email at beestudy@kcl.ac.uk